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Pediatric Palliative Care: Global Perspectives
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Welcome to Palliative Care Matters

Palliative Care Matters is a website intended for health-care professionals working in palliative care or related fields.

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News & Announcements...
UK Palliative Care News

Liverpool Care Pathway review published

Monday 15th July
The Liverpool Care Pathway should be phased out and replaced by an individual end of life care plan, an independent review led by Baroness Julia Neuberger recommended today.

The review was commissioned by Care and Support Minister Norman Lamb in January 2013, because of serious concerns arising from reports that patients were wrongly being denied nutrition and hydration whilst being placed on the Pathway.

Senior Rabbi at the West London Synagogue and crossbench peer, Baroness Neuberger and her panel now recommend that use of the Liverpool Care Pathway should be phased out over the next six to 12 months, and be replaced by a personalised end of life care plan, backed up by good practice guidance specific to disease groups.

The Review panel recognised that, when applied correctly, the Liverpool Care Pathway does help patients have a dignified and pain-free death. And they support the principles underpinning it. However, they heard of too many cases where the LCP was simply being used as a ‘tick box’ exercise, its users failing to take account of a patient’s individual needs.

The report is published at https://www.gov.uk/government/publications/review-of-liverpool-care-pathway-for-dying-patients .
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UK Palliative Care News

Consensus statement supports the Liverpool care pathway

Sunday 14th October
Over 20 organisations have signed a consensus statement in support of the Liverpool care pathway for the dying patient, including professional bodies, third sector organisations, disease specific charities and organisations representing care homes, hospices, social services and palliative care specialists. Please click here for details.
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Global Palliative Care News

#hpmglobal tweetchat @Twitter

Monday 7th May
Monday April 2nd saw the first weekly #hpmglobal tweetchat. The world of social media is having an impact of various degrees on the way we interact and communicate.

As Twitter expanded, users created opportunities to bring together the growing community around a subject (#hashtag) to have ‘live’ discussions for a period of time. @ctsinclair and @rfberry started the #hpm (hospice and palliative medicine) Tweetchat that occurs most Wednesday nights in the USA. This has been a great opportunity for the hospice and palliative medicine community to get together under the direction of a moderator and discuss important articles and issues in real-time. However, due to the timing of this chat, it has been largely North American-based. Creating a further chat at an early morning time in the US, has opened up the opportunity to engage the world over.

So now, every Monday at 1pm GMT you can join other hospice and palliative medicine professionals in #hpmglobal tweetchat.
More information...
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Global Palliative Care News

"The Other Side" - the true story of a doctor as a patient

Thursday 26th April
Dr Kate Granger (an Elderly Medicine Registrar at Pinderfields hospital in Yorkshire) wrote this book whilst undergoing treatment for a rare, aggressive type of sarcoma. The book is available from www.theothersidestory.co.uk and a Kindle edition can be purchased from Amazon.
Synopsis - "A true story of one doctor's journey as a patient coming to terms with a terminal cancer diagnosis. The hope is that healthcare professionals will read it, in particular young doctors and medical students, and understand exactly what being a patient is really like and how their behaviours, no matter how small can impact massively on their patients. It is also a story of personal battles with control and learning how and when to relinquish it."
All profits from the sale of the book are being donated to the Yorkshire Cancer Centre.
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UK Palliative Care News

Deciding Right - a new initiative for making care decisions in advance

Tuesday 13th March
Deciding Right has been published online. Deciding right is a north east wide initiative - the first in the UK - to integrate the principles of making advance care decisions for all ages. It brings together advance care planning, the Mental Capacity Act, cardiopulmonary resuscitation decisions and emergency healthcare plans.

Deciding Right website
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UK Palliative Care News

End of Life Care Strategy: Third Annual Report

Sunday 2nd October
The Department of Health has published its End of Life Care Strategy: Third Annual Report. The End of Life Care Strategy was published in July 2008, and this is the third annual report on progress in delivering the strategy.

Download the report.
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Global Palliative Care News

Palliative Adult Network Guidelines and Paediatric Guidelines published (UK)

Tuesday 19th April

The third edition of Palliative Care Guidelines have been published this week. The Palliative Adult Network Guidelines (PANG) represent the culmination of nearly two years work involving clinicians from eight cancer networks from across the UK who have thoroughly reviewed and updated the very successful second edition. The guidelines are available freely on-line at http://book.pallcare.info and an iPhone app will be available in the next week or two.

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UK Palliative Care News

End of Life Care Strategy: Second Annual Report

Sunday 3rd October
In July 2008 the Department of Health published the End of Life Care Strategy - promoting high quality care for all adults at the end of life. This second annual report sets out the continuing progress in implementing the strategy, highlights the need for further work and identifies the action intended for this coming year. See report at DoH website
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UK Palliative Care News

GMC Guidance on End of Life care published

Monday 21st June
New GMC guidance for doctors, Treatment and care towards the end of life: good practice in decision making, has been published and comes into effect on 1 July 2010. This guidance replaces the booklet Withholding and withdrawing life-prolonging treatments (2002). It expands on the guidance in Consent, patients and doctors making decisions together, which sets out the principles on which good clinical decisions should be based, and provides a framework for good practice when providing treatment and care for patients who are reaching the end of their lives.
Download here or visit the GMC web page.
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UK Palliative Care News

Update on the death certification process published

Friday 22nd January
The Department of Health have published Improving the process of death certification in England and Wales: overview of programme. It provides a general overview of the Death Certification Programme and an update on current progress.

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Conferences & Meetings
Cardiff University Accredited Palliative Medicine Short Course for Doctors
October 16-17, 2013 - Gwent, Wales, UK

See forthcoming events & meetings...
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Fri 28 Nov 2014 11:54:03 GMT