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Book of the Moment

LAST RIGHTS: Rescuing the End of Life from the Medical System

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Palliative Medicine Handbook on-line!

The Palliative Medicine Handbook 3rd ed. is available on-line at book.pallcare.info

Welcome to Palliative Care Matters

Palliative Care Matters is a website intended for health-care professionals working in palliative care or related fields. You are welcome to visit the pages as a Guest, but please consider registering, as this will bring several advantages.

An important feature of the site allows you, as a registered user, to automatically identify new items that have been added since your last visit. If you also register your profession and home country, several of the pages will show quick menu links to items most likely to interest you.

The site is being continuously developed. Please let me know if you come acrosss any problems or 'bugs'; also, any feedback, comments or suggestions are always welcome at Contact

News & Announcements...

Physician assisted suicide in Oregon - report on first decade
Sunday 11th May
There is an excellent objective review of the first decade of PAS in Oregon published in American Medcial News, the newspaper of the American Medical Association. It starts "The first decade of Oregon's unique law has surprised supporters and opponents alike. One benefit nearly everyone can welcome: The issue focused attention on end-of-life care." Read the original article...
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Guidelines for long-term neurological conditions
Friday 2nd May
These guidelines build on the Quality Requirements in the National Service Framework for Long-term (Neurological) Conditions (LTNCs) to explore the interaction between specialist neurology, rehabilitation and palliative care services, and how they may best work together to provide long-term support for people with LTNCs and the family members who care for them. The guidelines also provide practical advice for clinicians when caring for someone with an LTNC, as well as outlining indications for specialist referral.
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Awake! A Music CD of End-of-Life songs
Friday 2nd May
A palliative care nurse, has written and recorded a collection of folk-country music songs about end-of-life issues. He writes "This is a musical experiment by a creative nurse who hopes to expose and maybe change our attitudes about end of life. Steve Price has been a registered nurse for 25 years. He now works as a palliative care nurse. His experiences have inspired him to write his first CD."
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Advance Care Planning on YouTube!
Monday 28th April
A ICU Nurse and some colleagues have rewritten the lyrics to the popular song "Rockstar", to emphasize how some patients may feel in the ICU. For a light-hearted look at ACP see http://www.youtube.com/watch?v=OVx2mjjBvis For an alternative method of getting your message across, Mary Wohlford of Dyersville, Iowa, had her last wishes of "Do Not Resuscitate" tattooed on her chest. NB Such non-standard directives may not be legally binding! (http://www.pubmedcentral.nih.gov/articlerender.fcgi?artid=1003254)
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Palliative Care Services: meeting the needs of patients
Friday 28th March
A new report from the Royal College of Physicians says that all patients who are suffering and dying should have the opportunity for a good death, with management of symptoms and psychological social and spiritual support. Yet the report highlights that access to palliative care services is inadequate and inequitable, with unacceptable variations in care geographically, across different demographic groups and patients with different illnesses and needs. There is particular disparity between patients with cancer and those suffering from non-malignant conditions. The best care is excellent, the worst may be non-existent.
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MHRA issues concept paper on the review of the regulation of unlicensed medicine
Friday 28th March
The MHRA has published an informal consultation paper which seeks the views of stakeholders on the current arrangements in the UK for regulation of unlicensed medicines and the rationale for reviewing those arrangements. The deadline for comments is 30 June 2008. Read more...
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Macmillan Cancer Support and Cancerbackup to merge
Monday 21st January
Macmillan Cancer Support and Cancerbackup are delighted to announce that they have agreed to merge. The merger will further the aims of both charities to ensure that, across the UK, everyone affected by cancer will get faster and enhanced access to high-quality information at every stage of their cancer journey. Read more...
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Center To Advance Palliative Care (CAPC) Launches New Discussion Forum, USA
Sunday 13th January
The Center to Advance Palliative Care (CAPC) has launched CAPCconnect(SM) - a discussion forum dedicated to palliative care program development and growth. To learn more, visit http://www.capc.org/forums
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MHRA releases a public information report on Sativex oromucosal spray
Friday 21st December
The Medicines and Healthcare products Regulatory Agency (MHRA) has made available the Public Information Report for Sativex®, an unlicensed, cannabis-based medicine used for the relief of spasticity in people with multiple sclerosis (MS).
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Read the Palliative Care Matter news in newspaper style!
Monday 19th November
If you like browsing a Sunday newspaper, try the new style "Front Page"...
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